Blue Eyed Blog
Posts tagged suckitlupus
Alliance For Lupus Research Update
Jun 2nd
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With the end of May, we wrapped up a great month for lupus awareness. Events were held throughout the country in support of Alliance for Lupus Research(ALR) and people affected by lupus. Just a few of the events that took place during Lupus Awareness Month:
5/10 Dine for a Cause at Trattoria Amici – Glendale, CA
5/12 Tory Burch Shop for a Cause – Chicago, IL 5/14 Seattle Walk with Us To Cure Lupus – Seattle, WA 5/17 Collaborating for a Cure Reception – New York, NY 5/21 New Jersey Walk with Us To Cure Lupus – East Rutherford, NJ
The ALR hosted our annual Collaborating for a Cure meeting, where ALR-funded scientists discussed their current research and exchanged ideas about possible future areas of study. At areception held on May 17, we celebrated their achievements as they help us lead the way to a cure with their innovative research.
 On World Lupus Day we launched our Get In On It campaign and people everywhere have joined us in the effort to spread awareness and rally behind our mission to find better treatments and a cure for lupus. Visit our Get In On It page to see why ALR supporter Addy Batiquin and ALR-funded researcher Dr. Earl Silverman are In On It. Get In On It on our Facebook page and help us as we continue to spread awareness and raise crucial research dollars until we find a cure.
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Lupus in Children
May 20th
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With what seems to be a growing awareness of childhood lupus, we at the Alliance for Lupus Research (ALR) have been placing an increased effort into understanding more about this disease as it applies to children. In our recent Lupus Research Update (LRU), we examined the complexities of lupus as they relate to children, and the various aspects which make how it affects them different than for adults.
We continue this discussion in our latest podcast, Lupus in Children. In this podcast, we speak with Dr. Barbara Anne Eberhard, who specializes in pediatric rheumatology at Cohen Children’s Medical Center of New York, part of the North Shore-Long Island Jewish Health System. Dr. Eberhard speaks candidly about some of the considerations in treating children with lupus, and gives additional insight into a facet of this disease that we are gaining an increased understanding of every day. Please click here to listen to Lupus in Children.
Subscribe to our FREE podcasts on iTunes
 and new segments will be automatically downloaded for you, or you can also check back with the ALR websitefor the latest in lupus news.Leading the way to a cure.
*This podcast is meant to be informational and any individual who is being treated for lupus should consult their healthcare provider to determine the therapy that is right for them.
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Related articles
- World Lupus Day (oneblueeye.me)
- FDA Approves Benlysta for Treatment of Lupus (oneblueeye.me)
- Glaxo, Human Genome Sciences Win EU Backing for Lupus Drug (online.wsj.com)
GSK and HGS lupus drug wins green light in Europe | Reuters
May 20th
This is great news for SLE sufferers in Europe.
By Ben Hirschler LONDON | Fri May 20, 2011 9:55am EDT (Reuters) – The first new treatment for lupus in a half-century was recommended for approval in Europe on Friday, offering a new option for patients and underpinning multibillion-dollar sales expectations for its makers.
(Via GSK and HGS lupus drug wins green light in Europe | Reuters.)
Of course it’s all about the multi-billion dollar sales, and not about helping people suffering from a debilitating disease.
World Lupus Day
May 10th
Support Lupus Research. Really. Don’t make me stop this car and come back there.
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On World Lupus Day, join the world’s largest private funder of lupus research as we kickoff Get In On It, an exciting new campaign!
ALR funds the most innovative lupus research in the world – Get In On It will utilize the most innovative communication technology in the world to help spread awareness and raise critical research dollars until we find a cure.
Visit our website. Follow us on Twitter. Like us on Facebook and tell us why you’re in on it – your story may be featured on our website!
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Related articles
- Erin Kotecki Vest on Living With Lupus (blogher.com)
Sport The Color, I Will!
May 4th
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Lupus Foundation of America, Piedmont Chapter | 4530 Park Rd. | Suite 302 | Charlotte | NC | 28209
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Lupus In The News
Apr 20th
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With the recent approval of the first new treatment for lupus in over 50 years, lupus is making the headlines more and more. This month, we’re highlighting some other developments that you might find interesting. The potential role that systemic lupus erythematosus (SLE) might play in relation to other diseases commonly associated with lupus has been the focus of several recent studies. Whether it’s the possible relationship between SLE and depression, the genetic link with preeclampsia in women with lupus, or how environmental factors might increase the risk of developing autoimmune diseases, there is much being learned.
Diabetes and Disease Activity Predict Depression in Lupus
April 12, 2011 - ModernMedicine.com “Laura J. Julian, Ph.D., from the University of California in San Francisco, and colleagues analyzed the role of cardiovascular and SLE-specific disease-related factors as predictors of longitudinal development of depression in the prospective Lupus Outcomes Study (LOS).” Gene Mutations Offer Clues to Common Complication of Pregnancy Exposure to Insecticides May Up Autoimmune Disease Risk Next week we will be sending our latest Lupus Research Update (LRU), which will provide more interesting and in-depth information about current lupus research. Be on the lookout for that in your inbox!
For the latest, up-to-date information about lupus, please visit the ALR’s Lupus In the News page on our website. You can also join the discussion about these articles and others with our entire PALs (People Affected by Lupus) community onFacebook and Twitter. Leading the way to a cure. |
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Ginger Heaven
Mar 20th
I’m making cookies for a friend. It’s what we do around here: We bake. When things are good, we bake. When things are bad, we bake. When we want to thank our neighbors, we bake. Get the picture?
But my friend isn’t feeling well, and I have this bag of candied ginger sitting here. Ginger, as you know, is good for an upset stomach. So … you see where this is headed already, don’t you? Of course you do.
Open Epicurious on the iPad. Enter “Candied Ginger” as the ingredient and search. Up comes Candied Ginger Shortbread Cookies. A no brainer. I love shortbread cookies. I love candied ginger. Oh yeah, these aren’t for me … soldier on.
Oh. My. Gawd! Best. Cookies. Ever! I have to get these in a box to Erin right now or there won’t BE any to send! I’m throwing in a 1/2 dozen dried tart cherry scones I made yesterday to make up for all the cookies I am not able to send (because I ate them already, and sending them now would be tacky).
I hope you enjoy them Erin. I hope they bring a smile to your face. It’s not much, but I’ve already donated to your Lupus fund several times, to baking is all I’ve got left. The Tot made you a card to go along with them. 2 words: Retirement Plan. It will be worth a fortune someday, so hold on to it until she’s famous and then use it to blackmail her.
